No more restrictions!
I can eat what I want to. Go where I want to (including church, crowded places, and airplane travel). And I can basically resume life as normal (with the exception of having to drag oxygen everywhere until my lungs more fully recover).
Yahoo! Just in time for the holidays.
So now that I can attend Sunday School and Relief Society, it's Christmas Day and we're not having those. Oh well. Just one more week to wait.
Merry Christmas and Happy New Year!
One person's five assaults against Hodgkins lymphoma, including various treatments: chemo (ADV -B, ICE, BEAM, Adcetris), radiation, and an autologous and allogeneic bone marrow (stem cell) transplant
Purple Everywhere
Daily Herald picture
Friday, December 23, 2011
Thursday, December 15, 2011
My oncologist said something recently that made me stop and ponder.
I mentioned that I'm discouraged with how long it's taking to recover from the transplant. I'm still fatigued and needing oxygen 24/7.
She said she wasn't surprised at all. "After all, your body has a memory of what it's been through so it's healing from all three occurrences of cancer this time."
Wow! So my body this time is having to heal from chemo when I was 7 and 8 (MOPP and CCNU) and radiation, from chemo 4 years ago (ADV), and from chemo (ICE), radiation, and the tranplant with high-dose chemo (BCNU, Melphalan, Ara-C, and Etoposide).
Whew! No wonder I'm so tired!
I mentioned that I'm discouraged with how long it's taking to recover from the transplant. I'm still fatigued and needing oxygen 24/7.
She said she wasn't surprised at all. "After all, your body has a memory of what it's been through so it's healing from all three occurrences of cancer this time."
Wow! So my body this time is having to heal from chemo when I was 7 and 8 (MOPP and CCNU) and radiation, from chemo 4 years ago (ADV), and from chemo (ICE), radiation, and the tranplant with high-dose chemo (BCNU, Melphalan, Ara-C, and Etoposide).
Whew! No wonder I'm so tired!
Wednesday, December 14, 2011
100-day follow up is FINALLY scheduled for next Tuesday, the 20th, and I have only the following questions to ask, all under the category of "When can I. . .":
* Eat grapes and sushi?
* Stop leaving the room whenever vacuuming or dusting are being done and do them myself?
* Have plants and flowers in our house and work with soil?
* Swim and sit in a hot tub?
* Share hand towels with my husband?
* Stop having to wash bedding every week and towels every two days?
* Fly on a plane?
* Try food samples at places such as Costco?
* Eat soft-serve ice cream?
* Stop needing to wear a HEPA mask whenever I'm in a hospital or doctor's office?
* Shake hands?
* Sit in a room filled with people (attend Sunday School and Relief Society or eat in restaurants)?
* Pet our dog without having to wash my hands immediately afterward?
* Stop taking Acyclovir (anti-viral) and Dapson (to prevent pneumonia)?
* Start taking Crestor? Do I need to start taking it?
In addition,
* What can I do to increase my red blood cell count? Is a low level contributing to needing oxygen 24/7?
* What were the results of the PET, chest x-ray, and blood tests?
Whew! That's all.
* Eat grapes and sushi?
* Stop leaving the room whenever vacuuming or dusting are being done and do them myself?
* Have plants and flowers in our house and work with soil?
* Swim and sit in a hot tub?
* Share hand towels with my husband?
* Stop having to wash bedding every week and towels every two days?
* Fly on a plane?
* Try food samples at places such as Costco?
* Eat soft-serve ice cream?
* Stop needing to wear a HEPA mask whenever I'm in a hospital or doctor's office?
* Shake hands?
* Sit in a room filled with people (attend Sunday School and Relief Society or eat in restaurants)?
* Pet our dog without having to wash my hands immediately afterward?
* Stop taking Acyclovir (anti-viral) and Dapson (to prevent pneumonia)?
* Start taking Crestor? Do I need to start taking it?
In addition,
* What can I do to increase my red blood cell count? Is a low level contributing to needing oxygen 24/7?
* What were the results of the PET, chest x-ray, and blood tests?
Whew! That's all.
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